Jones 8--an Update

YAHOOOOOOO!

We're there! Right now it's J809, but I expect that to change as soon as a private room opens up. The staff pointed out my insurance will only pay for a semi-private, which kind of gets a "so" out of me. I want to be able to take Anna to visit her Daddy without her disturbing his room-mate.

They have changed the heart medication to Toprol, which seems to have gotten the heart rate under control. They did the modified barium swallow test today and he did very well sitting up without sending his heart into chaos, but not quite ready for a steak and baked potato just yet. The speech therapist did give some suggestions of how I can work with him and we'll get going on that tomorrow. Just remember with muscles, you don't use em, you lose em.

I spoke also to the rehabilitation doctor who said he thought TIRR would be a perfect fit for Pete and as soon as he's medically able to be moved (probably end of the week or first of next) we're at TIRR.

Can you believe 14 days ago right now, I was waiting for him to come out of surgery and go into the NICU for the first time? I can't. I was every emotional when they told me he was going to the real room today, which I took as an indication that the danger is over. It was a different conversation with God in a different chapel today. Good times are a comin!