Monday, January 4, 2010

TIRR-Inpaitent

Last November, Pete had a baclofen pump put in--and man is it a cute little bump on his tummy. It has been working quite well and doing its job. The muscle spacticity which has made Pete's life miserable for almost a year now is under control.

Not sure if I mentioned this before, but the problem really makes for all sorts of life problems. You know when you're falling asleep and your leg jerks and you wake up suddenly and wonder what that was? Pete would do that all night long, no way he could get a decent night of sleep. Since the pump was put in, he has done much better. Downside of the medication is that it is a central nervous system depressant (duh) and it does make Pete feel tired a good bit. He had some post surgery issues, which have resolved, and he's been released by the neurosurgeon for further therapy as of new years eve.

This afternoon, Pete and I got a call from the admissions people at TIRR, and a bed has opened up for him. We'll go tomorrow to check him in at lunchtime. The prospect of Pete getting 5 or 6 days of therapy is very exciting, although I am going to miss him terribly and feel very sad. We told Anna about it tonight and she said "no", no drama, just "no". I explained Daddy was going to the big gym to get better. No she doesn't get it really, but she said something like "can I have a samich for dinner", the 3 year old version of "since I don't have a choice, I don't want to talk about it anymore". I will not tell you what Steve had to say, because I think any bets on the subject would be sucker.

I'll try to keep everyone posted.

5 comments:

The Nicks Family said...

YAY for a bed! At least there wasn't drama from Anna, hopefully her little spirit understands! Definitely keep us updated!! And Steve can stick it with whatever he had to say!

Kristy Beins said...

Well, we have this big hearing on Wednesday. . .

PIP :| said...

I am so glad things are improving with Pete. Prayers, you are such a strong woman!

The Nicks Family said...

Oooh of course a hearing, I mean NOTHING can be more important than that right? ;)

Rozzie said...

Great update. Glad the Baclofen pump is working well. I just finished working in an acute rehab setting with patients who had them put in. It really will increase his ability to take care of himself, hope to hear how therapy went for you.